Dear, Mr/Mrs President
Hello im a kid who goes to a school in kentucky i would like to bring a birth defect called craniosynostosis
There is a birth defect called craniosynostosis. It it’s when the bones fuse together my little brother has it so his elbows and knees and the plates in his head are fused together. So that makes it hard to lay down sit and do lots of stuff.My brother has ben in and out of the hospital 50 times and he’s only 8 some people with this birth defect dont live but my brother did.
Craniosynostosis is a birth defect that lots of people don’t know about. I have a few ideas that we could do to let people know about this birth defect. One of these ideas is that you or someone could make a foundation or a fundraiser to collect money for this defect. The second idea is that you could donate money to Children’s hospital.One more idea is that you could talk about it in a couple of confrences.
Plz Plz think about it would love it if you could do one of these ideas my parents struggle a little with carrying him since his knees are fused together he can walk a little but not up and down stairs without help so Plz Plz think about it.This is what it looks like.